| Wednesday 28 Day 19 16mls and counting | Wednesday, 28th February 2007 |
| If it is possible for Charles to respond to the love and support he is going to get then I feel he will. His tenuous and persistent hold on to life has been outstanding and in spite of what he has been through he seems to give an air of confidence and silent reassurance to all who meet him. When his gaze settles upon your eyes you feel you can see right into the depths of his damaged brain. You can imagine the thoughts hitting blockages and trying to work around them, each time a little bit more of his world changes from confusion and mist to some semblance of our reality - understanding is established. Every glance another bit of mist is pushed up and away forever. Each passing day the counter to my motto is becoming more rewarding and fulfilling than I ever imagined it could be and under such remarkable circumstances. Receiving support from those around us at this time is like pouring rocket fuel on a smouldering bonfire. The glow reaches far and wide. The impact of receiving is even greater than giving! Cathy and Greta paid him a visit today for cuddles and cooing. I attended important meetings and kept very important computers working... He is up to 16Mls of milk every two hours with his new tube in place and Cathy has had to resort to 'Dairy Grade' machinery to keep up with demand. Thanks to the Wilton Park Cavalry in the form of Sue Reay we collected an NCT machine this evening. Thanks Sue. (I'll never forget that first hug of the many when I returned to work - full of aprehension at how I would be received and did people see this blog as appropriate or inappropriate under the circumstances. Sue ran up to me gave me a hug and said the blog was wonderful; all my fears whisked away in an instant.) It is so heart warming to hear of your families and connections with children and adults in similar circumstances. How you coped, what the problems were, how things have changed. The thing that stands out is what you get/got out of those relationships and how real and full a life can be with very little brain power on one side of the relationship (I can hear the wives nodding knowingly at that, but I do not really mean it as a joke). Ultimately we are influenced so much by those around us and it really is not about intelligence nor conforming to a 'social normal'. He has to get to 36mls every two hours before we go to the next stage so small steps for him and Giant leaps for us. No pics today... |
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| < Back to Baby | Posted by Neville Clark, 23/08/2010 |
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