Well the cuddles are getting better and his eye focus and response to me making silly noises and waving his arms about was as you would expect. (...keen and attentive I mean; for those of you who doubt my sanity at this point)
He particularly like the bottle popping sound I make with my lips (good party trick).
He failed to respond too well to my admirable pick-a-boo so I think I need more practice at that one.
The surgeons are openly perplexed at his lack of pooh.
They have decided upon a course of suck-it-and-see (pardon the particularly illustrative use of of this term). They don't know what the problem is, but the simplest problems have simple answers. They will try these in turn and just wait and see if they work. If they don't work they try the next most likely cure and so on until they exhaust the simple and have to consider the complex - and do more serious tests to see if he needs an operation of some sort.
First trial is to use Gaviscon to see if he is refluxing and use a medicine that ensures his peristalsis is pushing down not up. This started today.
I cuddled him and gently massaged his tummy for an hour just before we left (Cathy had done it for an hour earlier) and I definitely got something moving!! (it was time for a flush out so I left that to the professionals).
Overall we are coming to terms with accepting Charles as he is and working forward from here. We have a start point from the Registrar: in her opinion Charles scores about 7 out of ten (ten being the worst level of brain damage) so thank god for those 3 - I am having no problem loving those 3.
 |